African Palliative Care Association

A Clinical Guide to Supportive and Palliative Care for HIV/AIDS in Sub-Saharan Africa

Preface

Title Page

Disclaimer

Editors

Acknowledgements and Dedication

History of the Guide

Contributing Authors and Editors

Table of Contents

Abbreviations

Chapters

Part 1: Introduction

Chapter 1: How to Use This Guide
Lydia Mpanga Sebuyira, Liz Gwyther, Anne Merriman

Chapter 2: Overview of HIV and Palliative Care
Lydia Mpanga Sebuyira

Part 2: Clinical Supportive Care

Chapter 3: Principles of Clinical Assessment
David Cameron, Kathryn Therese Mngadi, Lydia Mpanga Sebuyira

Chapter 4: Pain Management
Deborah Anne Norval, Vanessa Adams, Julia Downing, Liz Gwyther, Anne Merriman

Chapter 5: Constitutional Symptoms
Linda-Gail Bekker, Vanessa Adams

Chapter 6: Respiratory Symptoms
Liz Gwyther, Vanessa Adams, Douglas Wilson, Dorothy Andreas Mandwa

Chapter 7: Gastrointestinal Symptoms
Henry Seruyange, Vanessa Adams

Chapter 8: Mouth Care
Deborah Anne Norval, Vanessa Adams,Sudeshni Naidoo

Chapter 9: Skin and Wound Care
Vincent Appathurai, Vanessa Adams, Sue Jessop, Rose Kiwanuka, Gloria Knox, Dorothy Andreas Mandwa

Chapter 10: Neuro-Psychiatric Problems
David Cameron, Vanessa Adams, Anne Merriman

Chapter 11: Pharmacology
Vanessa Adams, Karen Cohen, Catherine Orrell

Chapter 12: Integration of Palliative Care with Antiretroviral Therapy
Kathryn Therese Mngadi, Vanessa Adams, Henry Barigye, Henry Seruyange

Chapter 13: End-of-Life Care
Marietta Van Den Berg, Lydia Mpanga Sebuyira

Part 3: Psychosocial/Spiritual and Traditional Care

Chapter 14: Communicating with Patients and Their Families
Marietta Van Den Berg, Rosemary Nasaba, Susan M. Nieuwmeyer

Chapter 15: Traditional Medicine
Sekagya Yahaya Hills, Lucy Finch, Eunice Garanganga

Chapter 16: Spiritual and Cultural Care
John Mary Waliggo, Liz Gwyther, Ethel Mguli, Clarence Mini, Susan M. Nieuwmeyer, Mohammad Noor Salie

Chapter 17: Loss, Grief, and Bereavement
Susan M. Nieuwmeyer, Kath Defilippi, Carin Marcus, Rosemary Nasaba

Chapter 18: Complementary Care
Joan Mary Marston

Chapter 19: Nutrition
Liz Gwyther, Lucy Finch, Eunice Garanganga, Manjit Kaur, Anne Merriman

Chapter 20: Care and Support for the Carers
Marietta Van Den Berg, Kath Defilippi, Lucy Finch, Eunice Garanganga, Carin Marcus, Susan M. Nieuwmeyer

Chapter 21: Human Sexuality
Rose Kiwanuka, Eunice Garanganga, Jack G. M. Jagwe

Part 4: Environmental Factors that Influence Care

Chapter 22: Ethical and Human Rights Issues
Liz Gwyther, Lydia Mpanga Sebuyira

Chapter 23: Special Populations
Dr Julia Downing

Chapter 24: Financial and Legal Issues
Fatia Kiyange, Zipporah Merdin Ali, Sarah Banenya, Lucy Finch, Eunice Garanganga, Carin Marcus

Chapter 25: Role of the Nurse in Resource-Limited Settings
Dr Julia Downing, Lucy Finch, Eunice Garanganga, Rose Kiwanuka, Marcus McGilvary, Robert Pawinski, Nicola Willis

Part 5: Care of Children and Adolescents

Chapter 26: Clinical Assessment of Children
Paul Roux, Vanessa Adams, Henry Barigye

Chapter 27: Management of Clinical Conditions in Children
Henry Barigye, Vanessa Adams, Paul Roux, Seggane Musisi

Chapter 28: Integration of Palliative Care with ART in Children
Paul Roux, Vanessa Adams, Henry Barigye

Chapter 29: Psychosocial and Spiritual Care
Rosemary Nasaba, Kath Defilippi, Joan Mary Marston, Seggane Musisi

Chapter 30: Loss, Grief, and Bereavement in Children
Joan Mary Marston, Kath Defilippi, Carin Marcus, Rosemary Nasaba, Susan M. Nieuwmeyer

Chapter 31: Family and Community Support
Kath Defilippi, Juliet Carter

Chapter 32: End-of-Life Care of Children
Joan Mary Marston, Ruth Sims

Part 6: The Public Health Approach to Palliative Care

Chapter 33: Effect of Economics on Service Development
Anne Merriman, Robert Pawinski

Chapter 34: Models of Community-Based Care
Kath Defilippi, David Cameron, Anne Merriman

Chapter 35: Role of Government
Jack G. M. Jagwe

Chapter 36: Drug Policy and Medication Availability
Vanessa Adams

Chapter 37: Partnerships and Collaboration
Kath Defilippi, Phil DiSorbo

Chapter 38: Training, Mentorship, and Supervision
Dr Julia Downing, Kath Defilippi, Eunice Garanganga, Diane Jane Opio

Chapter 39: Monitoring and Evaluation
Dr Julia Downing, Liz Gwyther, Robert Pawinski

Chapter 40: Starting and Managing a Hospice Organisation
Kath Defilippi, Anne Merriman, Audrey Penrose, Andre Wagner

Chapter 41: Palliative Care Associations
Dr Julia Downing, Zipporah Merdin Ali

Part 7: Appendices and Indices

Appendix 1: Resources
Anne Merriman, Karen Frame

Appendix 2: Recommended Essential Medicines List (EML)
Vanessa Adams

Appendix 3: Drug Interactions of Antiretrovirals
Paul Pham

Index of Topics

Index of Drugs and Therapies